AFTER THE ASYLUM
Introduction
Living on the front line of psychiatry and
drug abuse in the community I have witnessed the social problems that only a
dual diagnoses psychiatric patient could see.
I am not trying to moralise or blame, only to report accurately to
understand what has happened. Having said that there is nothing here that is
not typical of the world of the care in the community patient so hopefully what
I have written will raise awareness by dispelling ignorance and attendant
prejudice.
While I was writing ‘The Road to the Asylum’ I had to put some financial
concerns aside. I arranged to work under the permitted work rule; I could work
as many hours that I was able but, while I remained on benefit I was only
allowed to earn twenty pounds a week. This caused unexpected problems. Some
people were apparently choked when they heard of this arrangement and thinking
for some reason that I was ‘getting away with it’ set about being disruptive.
There were whisper campaigns and rumours. I asked the social services and the
police for advice and they told me that there was nothing they could do until
there was an incident. I was advised to keep a record of the abusive comments I
had to endure. I mapped the rumour and added it to my account of events that
occurred since I left the psychiatric wards. There were other resentments.
People still think that writing and art are easy options and not work. I was
told by one of the MIND staff that I had wasted my life and thrown away my
education. I had actually earned a free place at a local direct grant school by
studying to do well in my 11 plus, staying in at lunch break for extra lessons
and working hard in class. I was told my benefit was ’ought for nought’ by
another one of the MIND staff when in fact my psychiatrist and social worker
said that I should claim because, though entitled to compensation for the
treatment I had received and the resultant minor brain damage, it was unlikely
that the hospital would accept responsibility.
In the Community
After I left Cane Hill hospital in 1981 I had
to stay in probation hostels. I was not on probation but it was the only
accommodation available. After a resident attacked me in the Bromley North
hostel, I was moved to Penge. You had to be out of the hostels during the day,
in Penge the hostel manager let residents stay in if they were helping with his
video project. I kept away from that and sometimes had to walk about in the
snow. I found a friend who was a junkie, she lived in Crystal Palace and I
could spend the day there sometimes. Eventually I was awarded a council flat on
the Ramsden estate in Orpington. I invited Barbara to live with me and after a
while she fell pregnant. She was sure she could not have children for some
reason, but our son was born in 1983 and we named him Charlie, after her
father. Her father was a Vietnam veteran, a sergeant who had done three tours
of Vietnam, and got a job as a postman after he left the army. He was very
supportive, sending care parcels at Christmas and on Barbara’s birthday. He
would send clothes for me as well. I started buying and selling second hand
records, there was a record factory in nearby St Mary’s Cray and undistributed
records and test pressings would turn up in the Save the Children shop in
Orpington. This was not the same premises that was given a makeover by Mary
Portas, Save the Children was at that time situated a few shops down the High
Street and has since closed. Buying records from the other charity shops in
Orpington, usually when visiting the High Street to do the weekly shop, I would
bring them home and check them for wear and scratches on a record player. After
reading the music press, usually the NME, to see which bands were fashionable,
I would then select records to put into a carrier bag, sometimes two, and take
them to the Tape and Record Exchange in Notting Hill, and sell them on. I had
to confidently walk past the front desk to the stairs leading to the first
floor collectors department. All this never brought me much money, just pin
money that meant the bills were paid and that there was food on the table.
Sometimes I attended the occupational therapy department, but this did not pay,
though you were given a midday meal morning coffee and afternoon tea. They also
paid your fares. This was partly for therapeutic reasons and partly because I
was on anti-psychotic drugs and could earn a reduction in the dose if I went
along with the care plan.
You
can’t bring up a child in a tower block so we were moved to the Mountfield
estate in St Mary Cray, near the permanent Gypsy, or Travellers caravan site
that was the first in the country. In 1962 we were told all sorts of stories
about the Gypsies in the playground, such as how a Gypsy could put a curse on
you if you did not give them gold. But over the years there was integration and
by the 1980’s it was difficult to tell the difference between the locals and
the Gypsies, or Travellers, should you want to.
Barbara
and I made friends, Barbara met Angie, a drug user whose friends were
criminals. Angie worked for an escort agency. Barbara did not use drugs, or
drink or smoke. My friend was Nat who was an ex-junkie but still used cannabis
and amphetamine. I continued with my art work and writing but was slowed by the
anti-psychotic drugs I was obliged to take. Nat was a keen guitarists and we
must have spent over a thousand hours talking about and listening to music,
usually cassettes which I sometimes brought back from London when I sold second
hand records, and passing my guitar back and forth, playing to each other
whatever we had learnt since his last visit. Nat liked Captain Beefheart, Pink
Floyd, and Hawkwind, and not only had more aptitude for music than me, but also
more confidence. He started to rehearse with some local musicians in a garage
on the Utopia estate in Farnborough. The Utopia estate was not a council estate
like Ramsden or Mountfield, it was a private estate. But Nat preferred to jam
and improvise as a rhythm guitarist and did not fit into the more structured music
the band started to rehearse when a Christian musician took them under his
wing.
The
band used cannabis and amphetamine but Christians sometimes work with drug
users, though they don’t go on about it. With this fellows help they started to
play songs and achieve pub rock standard, not easy to attain if you have ever
seen a band play in a bar. Nat either refused to compromise or was asked to
leave. They did not exclude him completely but Nat was relegated to operating a
light show which consisted of coloured lights operated by some simple controls
in a box. He was supposed to make the lights keep time with the music. The band
were good enough to play in the nurse’s bar at what was then Farnborough
hospital, now Queen Elizabeth hospital. But Nat’s pride was hurt and he walked
out half way through the set. Nat still moved back and forth from the Utopia
estate to the Mountfield estate, sometimes stopping on the way to visit a
couple who sold drugs. Amphetamine brought out the worst in Nat. He spent his
benefit money almost immediately buying cannabis amphetamine and tenants
larger. For a couple of days he was the life and soul of the party then he
expected everyone to feed and even clothe him. As he wore out his clothes as he
wore out his welcome. For a while he had a council flat in a tower block but
could not cope. He spent his rent money on drugs and did not pay the bills and
was eventually evicted. He took to sleeping in the empty trains at Orpington
station, when they still had door handles on the carriages. We moved away but
he followed us, but when things went wrong he was nowhere to be seen.
Nat
had been abandoned as a baby when he was two weeks old and had been taken into
care. He was in a children’s home then fostered. His foster parents dumped him
on the social services doorstep on his 16th birthday. Nat was half African and
he once complained that both black and white people were racist toward him.
With his afro hair people thought he looked like Jimi Hendrix. Nat thought he
looked more like Bob Marley and the painting on the cover of Bob Marley’s Natty
Dread LP, is where the resemblance shows. Nat was living with his girlfriend
Jane when I first met him, and he was a father figure to her son by another relationship.
He was good with children and I think he wanted them to have the childhood he
was denied. Because I had spent time in psychiatric hospitals I felt we had
something in common, we had both been in institutions.
Nat
had also spent time in prison, for burglary, and had an ongoing grudge with
another ex-junkie who lived on the Mountfield estate, Bill. Both accused the
other of grassing, neither would back down. We drifted apart and I did not see
him for years. Once I saw him sleeping on the stair well at the multi-story car
park at Orpington war memorial. Then I saw him from a bus at the bus stop at
Carlton Parade at the other end of Orpington High Street, opposite the library
park gardens. He was staring me down, obviously annoyed at me for some reason.
I last saw him in the High Street, he walked past me and smiled weakly as if to say there was no bad feeling
between us then one night I typed his name into the computer and it I saw the
notice of his funeral in a church newsletter. His full name was Natcio Munnings
and the funeral was in North London, where he went to stay sometimes. No-one
else is called Natcio Munnings. He was another unsung South London guitar
player who with his uncompromising hippie rock playing style and ideals may
have found success if it were not for the changes Punk rock brought.
Barbara, my son Charlie and I
moved into a house in South Darenth. We had sold the council property to the
council for a pittance and went in with my parents who bought a small terraced
house in South Darenth. They did not give us the house but instead we had a
part share in a thirty year lease. My parents were worried fir myson and did
not want him to bee brought up in the rough part of St Mary Cray. Soon they
were bothering me and though I had made some connections in the art world they
were asking me to work for them. I did work for them for a while doing some
bookwork and taking money to the bank but packed it in after a few months. When
you leave hospital you want the life you had before but it does not work like
that. In any case I made the effort to stop taking tablets and whatever else I
thought I was entitled to use. This happens to drug users who leave prison.
They dream of their release because they can go back to using the drugs that
they feel they have been deprived of. I could see this danger so I started
attending Joyce Green psychiatric unit as an outpatient. The attitude towards
patients seemed a bit different in North West Kent, to that in the borough of
Bromley. Staff attitude reminded me more of Oakwood, and that is not a good
thing. Patients were treated more like children. For it’s faults psychiatry in
Bromley encouraged adult attitudes and responsibility. So I was soon marked out
as a trouble maker. The head of the occupational therapy department took a
dislike to me and would not let me work in the art room all the time, I must do
woodwork as well. I said I could do wood burning, decorating wood with a
soldering iron.
After reading a bed time story
to my then 5 year old son I resolved to stop taking the tablets son. I was on
5mg Valium three times a day and a sleeping tablet, Halcion. I told my
psychiatrist, Dr Shan that I intended to do this. Dr Shan was skeptical, saying
that I was never going to stop taking drugs, adding that I had an addictive
personality. He then told me that I would have to be admitted as an in-patient.
He drew up a withdrawal programme for the Valium which was for ten days, instead of the
recommended reduction of 2 - 2. 5 milligrams fortnightly recommended in the
British National Formulary. So instead of a minimum of 12 weeks I was to
withdraw from the drug in a week and a half. Dr Shan added I did not have to worry
about the Halcion, though I now know that the sleeping pill was the equivalent.
What neither of us knew was that Halcion would be the subject of questions in
parliament and eventually be banned from sale in the UK. The reason for this
was that the manufacturers failed to disclose the frequent and disabling
adverse reactions these drugs caused, even in small prescribed doses. These
reactions included bizarre behaviour and psychotic symptoms that I remember
experiencing and influenced my decision to stop taking the drug.
Perhaps Dr Shan mistook the
side effects of the Halcion for my own behaviour after all he had not known me
for very long. I had been taking Halcion
for years. The minutes of evidence presented to the House of Commons
acknowledge that patients have been misdiagnosed after being prescribed
benzodiazapines the class of drugs to which Valium and Halcion belong. The minutes of evidence also state that a
report by the Royal College of Psychiatrist states that no single underlying
trait or unique constellation of personality features can be identified as
predisposing to drug abuse. In other words the concept of the addictive
personality is a myth. Drugs are a disease of exposure and that is what
happened to me when Dr Shan, after the ten day withdrawal programme, prescribed
an anti-psychotic injection which I now know is contra indicated during the
withdrawal of benzodiazapines. Again the
BNF states that that anti psychotics should be avoided as they aggravate
withdrawal symptoms which according to the formulary may persist for a year or
more. The effect of this was so distressing that I took an overdose of
phenobarbitone and ended up on the heart ward. I was in a coma when they found
me and could not pump me out so they gave me haemodialysis washing my blood out
with saline. My family were told that I would either die, or survive as a
vegetable or with brain damage. I was taken back to the ward and told that I
would receive another injection so I walked out and walked home. Shortly after
Barbara my partner at the time decided to visit her family in America saying
that she would be gone for three months, so I was left on my own with no
counseling or help from the social services. I had stopped taking drugs but
when Barbara told me that she was not coming I fell into self-neglect. It was
obvious that after we moved in, probably encouraged by Angie, that Barbara
wanted the house to herself. Her attitude toward me changed and this did not
help my withdrawal programme because she became unsupportive. Then after she
left my family were also unsupportive. When talking to my father on the phone I
heard my mother say, he’s not having that house. They kidnapped my pet dog one
day and I came home to find the barrel of the lock on the front door changed. I
had to break a window to get in but that meant the house went to rack and ruin,
because local lads raided the house when I went to the shops as the back door
had no secure lock as I had lost the key. Items like a row of books or a rack
of clothes would disappear. I found one of them in the front room who talked
his way out of the front door. The police called more than once not only
concerned about my welfare but also on one occasion to see if ‘anyone was here
who shouldn’t be’. Eventually I was taken to Stone House hospital where Dr Shan
gave me anti- psychotic drugs. My parents knew nothing about the Halcion and
its side effects, or of the withdrawal programme I was subjected to, so I took
the blame for the subsequent events. When my common law wife left me
taking my son for good my parents harassed me stealing my dog and changing the
lock on the front door. I heard my mother say ‘He’s not having that house’ in
the distance at the other end of the line when I was talking to my father on
the telephone. Then, as I had to break into my own home, the house became
vulnerable and local drug fiends started stealing from the house. Rows of
books, cassettes clothes would go missing. I came back to find one of them in
the front room. I spent the winter without electricity before I was sectioned.
Then my father had me sign my share of the house over to him, while I was under
the influence of anti-psychotic drugs.
In the Community
Stone House was
not originally a psychiatric hospital it was a converted school. Patients were
expected to attend the industrial therapy unit or the occupational therapy
department. Wages were very low; the most you could earn in the industrial
therapy was £14 a week, £5 a week in the occupational therapy. Most of the
patients were good company, one cannot help that the mean spirited attitude in
the community is a result of being spoilt. In fact for a while just before the
hospital was closed patients were asked to work for nothing as there was no
money for wages. The patients continued to work for nothing, can you imagine
that happening in the outside world. With the closure of the hospital both the
industrial and occupational therapy services have closed down. Patients enjoyed
socialising whist doing therapeutic work. Now they exist in isolation in the
community, often abused and exploited.
In
Stone House hospital patients were usually given anti-psychotic psychiatric
medication which had unpleasant side effects and often led to illness in later
life. But patients endured their illness usually without complaint. It is a
shame when patients are expected to take medication unnecessarily. The asylums
that were run by the Tukes, Quaker reformers in the 19th century,
who with their ‘moral treatment’ model adopted a more compassionate approach to
mental illness, had no need for enforced or coerced sedation. I believe it is a
myth that patients become violent when not on medication, in fact it is
possible that medication and its side effects causes not only resentment but
makes patients more vulnerable to the street drinkers and drug users in the
community as it affects their judgement.
Some
patients are aggressive but most are not. Despite the grim circumstances, the
medication, the overcrowding and the poverty most patients were good natured.
Andre Breton, the founder of Surrealism described the mentally ill as naive and
honest. Enduring prejudice against the mentally ill will continue to buy misery
all round. I can recall a few of the patients, though all deserve to be more
remembered that they are, and I hope this will give the reader a more informed
view than the usual media stereotype.
When
I arrived on Vintry, the admission ward, I was given a bed in a small side
ward. All sorts of patients passed through Vintry ward, alcoholics the suicidal
depressed, those experiencing manic and psychotic episodes were all monitored
by nursing staff their reports read by the psychiatrist who would decide which
course of treatment was appropriate. I was very distressed, and was prescribed anti-psychotic
drugs, which I spat, learning to hide them in my mouth until I left the ward.
But I got caught, I was challenged, and put on injections. I was transferred to
the main dormitory. Three of the twenty beds were taken by patients who had
jumped off the Brent bridge, which spanned a motorway a few hundred yards from
the hospital, and survived. There was a gypsy fellow on the ward who was quite
friendly unless you happened to leave the dormitory door open whereupon he
would punch you. There was a one eyed fellow called Bill. He sat on his bed
most of the time and often bought half a bottle of whiskey. I had borrowed a
couple of pounds off him and offered to pay him back when we met in the
corridor. 'You don‘t owe me anything‘, he said. Shortly after I passed his bed
and heard him say ’When you come to the end of a lollipop’, to no-one in
particular. That was the last thing I heard him say the next thing I heard was
that he had taken an overdose and died.
Patients
too ill to attend or not yet referred to occupational therapy sat in the day
room watching television. In the evening some patients and visitors would
socialize in a gloomy smoky foyer by the north entrance to the hospital next to
the ward. Gay Watts sat in the day room most of the time, by a shapeless
patchwork blanket that she had been knitting. But she didn’t knit anymore
because she suffered from Huntingdon’s Chorea which is a physical illness with
psychiatric problems. Gay, not yet thirty was so ill that she could not talk,
and was not going to get better. In the community she would have been ridiculed
and bullied but in the days of the old asylums she could at least be spared
that distress. The staff thought the world of her but did not spoil her, and
some of patients looked after her during the day as the nurses were always
overworked. Everyone looked out for her and no-one complained when she repeated
the same phrase over and over again in a heart-rending plaintive voice. ‘My
mum’s coming to visit me’ ‘tea with sugar’ and ‘I told you'. Sadly she could
only repeat a few phrases as her mind was going along with her health. The
other patients would fetch her knitting, or her bean bag, in the hope of
quietening her. Once she was walking, with difficulty, holding her skirt which
was slipping, to the foyer where patients socialised in the evening with
visitors, often ex patients who wanted company. Colin Sams was a visitor in
those days. Gay stopped and announced, ’I’ve got Huntingdons. Maureen Rose, a
spirited patient who would answer anyone back, said ’Yes, Gay you’ve got
Huntingdon's’. One of the Brent bridge survivors, Arthur Watkins, used to run
errand for patients who wanted food from the local Chinese takeaway, situated
just the other side of the Brent bridge. He was paid a pound for every order.
Such was the camaraderie on the ward that anyone who tried to poach his
customers was discouraged.
For
a while I was given the job of feeding Gay at dinner time, until a nurse would
take over distract Gay and mix her tablets in with her food, which they are
allowed to do when patients are non-compos mentis. I would wait around and
clear the table for Gay, the she would calmly up turn a few tables and chairs.
I turned them the right way round, worried that the staff would give her more
sedatives if they found out.
Phyllis
Rose usually sat around a corner in the foyer. Phyllis was in her late fifties
and smoked heavily. She was prescribed Valium. She had studied comparative religion
at university and worked as a secretary at one of the famous film studios, and
had met the stars of the screen but did not go on about it. She had fallen on
hard times and ill health and was a respectable woman who was humiliated by her
destitution. I once asked her what she thought of Satanists and out of nowhere
and out of character replied that she did not know of a Satanist who wasn't a
heroin addict. She liked Arthur and called him her Parisian friend. Arthur was
almost mute, offering the odd oh and alright when taking orders from the take
away as a reply. Phyllis was concerned that they sent him to the shop because
he walked with a limp after jumping off the bridge, but another patient
reassured her saying that he was paid well and was the richest patient on
Dowgate ward. ‘As long as he gets paid I suppose it’s alright’ said Phyllis.
Though life for her was a source of regret I never heard her complain. I asked
Arthur about art therapy in the hospital and he said he had attended in the
sixties to get out of going to industrial therapy but could not draw.
I
was referred to a long stay ward, Dowgate. Unlike the admission ward, Dowgate
was an all-male ward, mainly middle aged and elderly patients. Some of the
patients were committed years ago for petty crimes and indiscretions that would
mean little today but at the time were seen to be indicative of mental illness.
One fellow. Victor, had been a Desert Rat during the war fighting Rommel in
North Africa. When he arrived back in Britain he got into a fight with a
policeman and was duly summoned to court. He was found not guilty but the
police had him committed under the lunacy act, and he had remained at Stone
House for nearly fifty years. There were similar cases over the years these
patients became used to life in the hospital and could not survive without
it. But there were also patients that
needed care from the start. Many of these were patients on Charterhouse ward.
In other purpose built psychiatric hospitals these patients would have been
kept on the back wards behind locked doors mainly to stop them wandering off
but also to stop morbid sightseers. But Charterhouse was walk through and any
visitor could witness the appalling physical and mental state of some of these
patients. Some were in a semi vegetative state, moved from their beds in the
morning to the day room then back to the dormitory at night.
Chelsea ward was locked to stop its geriatric patients
wandering but there were no locked wards for aggressive patients, these were
transferred to Bexley hospital where they did have locked wards. But mainly it
is a myth that psychiatric patients are violent. By and large it was safer on
the long stay wards than in the community.
On
Dowgate ward patients were at least ambulant and though some were almost mute
most attended therapy during the day leaving a few who could not work on the
ward. One patient Frank, who did not attend therapy, made it his job to keep
the kitchen tidy. The kitchen was kept locked during the day except at tea
break and coffee break when it was open for half an hour and at lunch break for
an hour when patients could make their own tea and coffee. We would have to buy
tea from the hospital shop as the ward tea was made with industrial size tea
bags. Sugar was put in the tea pot along with milk and poured straight into the
cup. There was a rota for the patients to take turns for kitchen duty, making
and pouring tea and washing up the cups and dinner crockery and cutlery as
dinner was served on the ward. In the evening nurses left the kitchen open for
a couple of hours after evening milky drinks. After the kitchen was locked
patients had to make tea from the warm water in the washroom. As the water was
not boiling to prevent patients scalding themselves this was not a very satisfactory
brew.
Though
most of the patients on Dowgate were quiet and friendly, one patient, Ray
became agitated at evening meal time, he was a big fellow and the food sent up
from the kitchens was never enough for him. He would march down to kitchen and demand
another dinner, banging on the kitchen door until one of the kitchen staff
presented him with a second meal which he would bring back to the ward. Ray,
allegedly on a twenty year section for setting fire to a psychiatrists barn was
said to have spent time in Rampton. He told me that he was not even supposed to
leave the ward, such were the conditions of his section, but this did not stop
him occasionally absconding and signing on homeless at the Elephant and Castle.
During the day the nurses would have to inform the police of Ray’s
disappearance. The police would then visit the ward. Ray would return of his
own accord in the evening making no secret of the money he had obtained from
the social security. The staff were always indignant and would demand he give
the money back as it was obtained under false pretences but Ray would
steadfastly refuse treating himself to tobacco and other luxuries from the
hospital shop. On one occasion the nurses conspired to win the money back from
Ray in a game of cards. Ray was usually sedated on his return and the staff
thought that they had the advantage and could easily win the money back, but
like the fellow who can hold a tune however drunk he gets Ray was an
exceptional card player, and won money off the nurses.
Most
of the patients on Dowgate were abandoned by their families and to save
patients feeling left out the nurses would collect money of the patients and
buy them a present with their own money, handing out the presents on Christmas
morning. On the patients birthday the nurse would ask the kitchen to send up a
cake which would arrive with the evening meal.
Sometimes
a couple female patients from Walbrook ward would visit Dowgate, looking for
company. Walbrook was the female long stay ward. Patients on these wards were
usually there for life. This changed when it was announced that the hospital
was to close. Like Dowgate any patient squabbles were usually about cigarettes.
Two of the patients on Walbrook were blind, but quite talkative. Like Dowgate most
of the patients attended industrial or occupational therapy and sometimes there
was talk of who was working and who wasn’t. The wards were usually fairly quiet
patients would watch television when not at therapy. I doubt if the so-called
sane members of society would be so well behaved under the same circumstances
their behaviour would probably soon degenerate.
There
was a tradition of nurses emigrating from Ireland to work at Stone House. I
remember one day a few of the female nurses singing Irish songs in the hall,
they had beautiful voices. Not all nurses were from Ireland, some were from
India, China, Malaysia and Mauritius. Some of course were English. The staff
were multi-racial and none the worse for it. In the hospital there was little
of the bigotry and blame culture that exists in the community. Patients and
staff were too busy to indulge in petty prejudice; racism and homophobia were
almost unheard of.
When
the hospital closed wards were merged as patients were found homes in the
community. In the old hospitals the days were long, patients were woken at
seven in the morning, and though the patients slept in crowded dormitories, had
little money, and had to take medication that often did them no good they had a
roof over their head and three square meals a day. Patients since the closures
are more likely to end up sleeping in a doorway on the street, where they will
probably fall in with beer drinkers and drug users and the same is true for
those who manage to find a place in a hostel, a bed-sit or accommodation in
social housing. In either case they may be obliged to take medication which
only undermines their resolve. Without the old hospitals patients can seldom
recover from manic or psychotic episodes on the ward and they seriously
mentally ill that need long term nursing are more likely to be subject to
neglect. It is to society’s shame that better provision has not been made for
the mentally ill who later in life will usually
also suffer from physical illness. While society prefers pay football
and celebrity culture, financiers and the captains of industry astronomical
wages to name but a few of its unnecessary expenses, the mentally ill will
suffer causing resentment and distress throughout society .
I left the hospital when Alice
Rees offered me a room in her house, she let rooms to patients taking twenty
pounds a week out of our benefit money. It seemed and was a good deal seeing
that in hospital I was in a poverty trap as my benefit had been reduced to a
few pounds pocket money.
I once saw Dr Stoat pay a visit to the Dartford Clubhouse toward
the end of the 1990’s. The Dartford
Clubhouse is a day centre based on an American model of day care, and was
started in 1992 as Stonehouse hospital was closing. The clubhouse staff, some
ex Stonehouse staff showed favouritism right from the start. Chalky ‘Len’ White
and Graham White (no relation) were in with the staff from the start.
There
were already rumours about me at the clubhouse and after the Clubhouse moved to
Twisleton Court Dartford, and the founder of the Dartford Clubhouse, Marcus
Gramps moved on, Amy Tebbut took over and was vocally homophobic. Amy Tebbutt
told me that that two gay patients had committed suicide at Stone house but
that was nothing to what went on there. But I had been a patient at Stonehouse
and had seen for myself.
Apart from the vast reduction of beds and staff for the
psychiatric patient that occurred when the old asylums closed the wards
themselves are increasingly used for treating the casualties of the drug epidemic.
Psychiatrists who still cannot distinguish between natural and drug induced
psychosis feel obliged to treat the psychotic who are socially disruptive. The
prisons have no room for the minor drug offender and it is not unusual to find
small-time dealers who have overindulged in their own wares on the wards of the
local psychiatric unit. And what a nuisance these characters are with flaunting
the luxury trappings bought with the profits from selling drugs. These types
demand priority treatment, resort to threatening behaviour, harassing the other
patients. They complain about the food and expect to be served first at the
dinner table. They come and go as they please, conduct their sordid business
from and in the hospital, even dealing on the ward. Often they consider
themselves above any therapy that they are referred to. Thankfully these
dealers find the hospital situation beneath them and as soon as they feel
’better’ they go back home to their drug-funded family and lifestyle.
Psychiatric staff who can be notorious bullies to legitimate patients seldom
stand up to the drug dealer on the ward who adopts a prison daddy stance.
Besides having to cope the with the street drug induced problems, the use of
the legitimate psychiatric drugs is bringing its own issues. Drugs administered
on the ward, where the patient is fed three meals a day and has domestic staff
employed to clear up and clean after them, are routinely given to the care in
the community patient. A typical drug regime for a middle aged patient often
means that a cocktail of drugs is prescribed. Obviously the patient does not
wish to take an antipsychotic that seldom effectively combats psychotic
symptoms and has disabling and disfiguring side effects, so they are injected
with a long acting preparation of the drug, attending an outpatients department
for this purpose. This may be supplemented with an antidepressant a side
effects tablet and a sleeping tablet. Often the patient, hopelessly
unemployable often as a result of such a medication regime, is left on their
own to self-medicate or drink. In the days of the old hospitals the nurse would
immediately recognise the patient who had been drinking, and confront the
patient concerned. In the community it is different. The patient for instance
who is awarded a council flat on medical grounds will find their problems just
beginning. As soon as neighbours find out that the new resident has a history
of mental illness they will be prejudice. Drug dealers and users looking for
premises will try to befriend the patient, vulnerable not only because of their
illness but also as a result of the medication. The patient is expected to cook
clean and shop under the influence of drugs, legal or not often both. Almost
inevitably they fall into self-neglect and are treated by the locals rather
like a medieval dancing bear. Casualties of this scenario are prioritised by
the mental health service often before the anorexic the recovering manic
depressive, the depression case who quietly turn their suffering inward.
The appalling side effects of these drugs has been
mentioned in the House of Lords, by the Lord of Howe, and confirmed by Lord
Bragg who is Patron of Mind,a mental health charity. Lord Bragg quotes a couple
of psychiatric patients one of who claims that ‘I was given Haliperidol. It
made my limbs stiff. It gave me anxiety. I was suicidal’, in response to The
Lord of Howe who lists some of the side effects of psychiatric drugs. Lord
Bragg quotes another anonymous statement,’I want the government to realise that
Depixol and other antipsychotic drugs can cause apathy… it was as if my soul
had died’. While it is commendable that these Lords are not only aware of these
problems but prepared to speak out about them, why did it take so long? It’s a
bit late for the trusting medication compliant patients in the Dartford area,
Alice Rees, Dick Scott, John Phillips, Michael Egan, Ken Oxford, Boysie Parker,
on injections while the health authority claimed that it wouldn’t be worth it,
to give him the liver transplant he need. Ken Oxford died diabetic, losing one
leg then the other as the wretched Dartford Clubhouse ’staff’ visited bringing
Guinness and cigarettes and total strangers to gawp at poor Ken, who had worked
as a Clubhouse receptionist for years without pay. That bullying, chemical,
psychological and physical exists in the mental health is in no doubt. Obviously
any evidence of bullying is kept from accreditors and important influential
visitors. Although there was bullying and favouritism at the Dartford Clubhouse,
the same patients expected to do the washing up, the same patients rewarded for
their minimal efforts with trips abroad and expenses. When Dr Stoat visited in
the late nineties he saw none of this. On the actual
day of Dr Stoat’s visit members and staff were allocated their stations and
each member rehearsed as to what they were to be doing when Dr Stoat
arrived. Preparations started
days in advance, the visit rehearsed from start to finish. Self-harmers,
disruptive patients, scapegoats and anyone likely to ask awkward questions were
given the day off or stationed away from the tour route. Graham White was given
the job of showing the politician around accompanied by the Clubhouse manager.
Having sung the Clubhouses praises in America and Europe the fellow was well
rehearsed in the dogma that the clubhouse passes off as therapy. The same spiel
that prospective members are given as they work their way through orientation
whereby they are indoctrinated with the clubhouse model. It is quite understandable that the Clubhouse go to this
trouble to create a false impression of what was often a stressed environment.
Again like MIND they are a charitable organisation often forced to employ
inexperienced and unqualified staff who, thanks to an under-funded mental
health service often had patients that required professional help dumped on
their doorstep. As the admission wards closed and with them the local day
hospital the Psychiatrists and Social Services had and still do, have no
alternative to referring acutely ill patients to the Clubhouse and MIND.
It
can be argued that to provide any mental health service lies and deception must
be employed to get any funding, then again there is an argument for ceasing to
label people mentally ill because they do not conform to standards of heath and
behaviour dictated by a democratic government. That the government is ill
informed and that Dr Stoat, spokesman for the national health on television and
advisor to the prime minister should have been deceived is no surprise to those
who work in the mental health services. You can be sure that the plight of Ken
Oxford and the rest of the club members who died well before their allotted
three score and ten were not on the agenda that day.
Did
the Clubhouse staff run off with my share of a Clubhouse lottery win as another
patient told me? Did they leave out other patients or just steal my share? I
heard a rumour that this happened and there is some circumstantial evidence
that indicates that this may have been the case. John Hall was talking to Amy
in the upstairs office at the Clubhouse. But that’s thirty thousand pounds,
then Amy Tebbutt said be quiet then Amy Tebbut approached me in the clubhouse
in the upstairs office and told me that I would not know what to do with a lottery
win. I found Staff members Correen Campbell and Christine Aikenhead hiding
under the table before an after- hours meeting in the clubhouse cafe. Were they
discussing the lottery win? Staff member Correen Campbell bought a house about
that time even though she had not been working that long. Christine Aikenhead
bought a new car as did Silvia Clive who took a holiday to Egypt and Paul
Wright bought a new motorbike. I remember that I asked to check the lottery
ticket, but Graham White was there and said why and somehow I dropped the idea.
There
was a low standard of care and a high mortality rate among the patients. The
staff were asked to be key workers for five patients and I remember them saying
we can only look after two or three at the most. ’Well we just won’t do it.
Paul Wright used to be a road manager for rock band AC/CD among others. ‘I set
up the gear for John Martyn, went to Jeff Beck’s yearly party he told me’. Now
he was following Eleanor Jukes, a habitual self-harmer, around all day. Amy Tebbutt
would dote on Chalky White, and Brian Taylor. Sylvia Clive would look after
Boysie Parker. Silvia Clive brought beer to Boysie Parkes, an alcoholic and
cirrhotic, she said it was the only way to get him to do anything. Boysie was
once a porter at Stone House and Correen would take Guinness and tobacco to Ken
Oxford when he was hospitalised with diabetes. Ken he lost one leg then the
other. Denise Tester was not the only patient at the Clubhouse to commit
suicide. Ann Marie Bartle was an attractive young patient who jumped off a roof
to her death and a young fellow died an overdose I think. There was bullying at
the clubhouse Michelle Oakins who died of an aneurysm and a women who worked in
the kitchen called Janet were the victims. Just called horrible that sort of
thing, verbal abuse quite mild upsetting. People would upset them. Club member
Dick Scott was critical of the clubhouse, he died of a heart attack and so did
his best friend Alice Rees, also critical of the clubhouse. John Phillips and
Brian Taylor, both medication compliant died of heart attacks.
John
Hall and Mick Rutherford, friends to this day may know more about the alleged
lottery win, seeing that Mick Rutherford told me that John Hall bought a house.
Oh no, he was left some money he said. I never asked where he got the money
from. Was he saying ‘oh no it wasn’t with lottery money’? I wondered if anyone
who attended the Clubhouse might know something, about the rumour concerning an
alleged lottery win, and have noticed the high mortality rate. But I decided
that even if it was true no-one would admit it and that they would somehow
cover their tracks. I would be up against a gang, even if I could get anyone to
investigate. For a while a woman called June ran the clubhouse and there was a
falling out when she asked Andrew Fields to adjust the attendance figures.
Andrew left as such an act went against his Christian beliefs. The clubhouse
was next door to Dr Sharma’s research facility. Dr Sharma was struck off for
selling research sample tablets to the local hospital, Darent Valley. For days before his
visit, the clubhouse staff and members were cleaning and organising, arranging
for troublesome members to have the day off and making sure that it was the
spoilt favourite club members that came into contact with the M.P. were on hand
to show him around.
The
impostor patient has never had it so good. This fellow who has usually started
his career as a professional patient by being admitted to the psychiatric ward
over some social indiscretion, finds the lodgings acceptable, and the three
square meals agreeable, accompanied as it is with some pocket money. This
patient usually makes himself useful on the ward by acting as the eyes and ears
of the staff, grassing his way to the security he craves. In this way he is
often the first to hear of any opportunities meant for the genuinely ill, and
as he still has all of his faculties is often able to jump the queue when it
comes to any perks like more favourable employment or accommodation. Time
consuming and parasitic this fellow is only too keen to not only pray on the
system but the other patients who he manipulates uses to advance himself. As if
these were not enough problems for an increasingly under- funded mental health
service, the criminal fraternity has increasingly
been admitted into the mental health service, as a direct result of
overcrowding, and because with a staggering decrease in-patient beds and the
demise of the occupational and industrial therapy departments, there is little
or no chance of their having to remain in hospital for very long, and no chance
of their being made to work.
Graham
White. I first had the misfortune to meet this fellow many years ago when he
reported me quite wrongly to the staff at Joyce Green hospital. I had a flyer
through the post about an art rock artist. Graham’s modus operandi had not
changed. He has been manipulative in the past and is a user who is unlikely to
pull his weight. He befriends staff and then waits to find any confidence which
he will use to further himself. He told
me that he knew the then leader of the clubhouse Marcus Gramps had taken drugs.
Whether he was blackmailing him I do not know but I do know that Graham White
has, according to Mandy Payne, left a female patient pregnant while preferring
to go on buckshee trips abroad with the clubhouse, 17 at the last count, rather
than fulfil his responsibility as a parent. He moved into the group homes and a
MIND flat with a pile of pornography which he made no attempt to conceal even
when women entered the flat and has a preoccupation with older women, the theme
of his pornography collection, and female psychiatric patients. Can you imagine
the disruption he caused in the MIND house? Before he was in the MIND house he
was in the group home at Stone. At the clubhouse we were expected to work for a
minimum wage then for each hour we worked work an hour voluntarily for the
clubhouse. Graham would not even take his turn washing up let alone do any
voluntary work. I wonder how he got away with that knowing what he did. When
Marcus Gramps left I think Julie took over. Andrew Fields left rather than fix
the attendance records, as he was a Christian. Then Julie left and Amy Tebbut
took over. Her son was an addict by the way. That may be relevant because if Graham
found out and he will make it his business to find such information he may
again have used that as a lever to get more trips abroad, and the attention he
craves. While at the group home he refused to do his share of house work. I
told him on the Saturday I intended to visit Denise Tester on Sunday to collect
a photograph of her Scottie dog as I had said I would draw its portrait for
her. Denise was a cleaner at Stonehouse hospital who was suffering from
depression. But by Sunday the housework needed doing as the social worker was
visiting on Monday and Graham announced that he was going to the Welsh Tavern,
and as it was obvious that he would be in no state to do any house work when he
returned, I had to cancel the visit and tidy up. That night Denise took her own
life. She was found the next morning any empty wine bottle and tablet bottle by
her.
One
morning he told me had taken a couple of temazepam and later when he was out I
admit I took a look around his room to see what tablets he had to try and
ascertain what was going on because he had been told by his social worker not
to take them in the group home. This was said in front of me and I suppose
Graham was showing off to me in a ‘nobody tells me what to do way’. It may have
been wrong to snoop in his diary but when I saw an entry that read ‘glad that
Denise is dead I won’t have to listen to her common voice anymore’ I can’t help
wondering if there wasn’t any malice towards me as I had told him I was drawing
a picture for her. Around this time he showed me a book. This is where I get
the symptoms of depression. I learn them and tell the doctor, it’s easy.
While
the staff and Graham White indulged in trips abroad, the club members were
expected to cook and wait on the chosen few. Sadly the neglect that occurred
when the staff refused to look after their allotted five patients and would
only be key worker to three showed in the high mortality rate and today being
remembrance Sunday, and the mental health little better than a guerrilla war
zone, I will name the fallen. Alice Rees and Richard Scott active critics of
the clubhouse, both died from heart attacks. Ken Oxford, who was a faithful
receptionist who worked voluntarily. Boysie Parker an ex porter from Stone
house. Ann Marie a younger patient took her own life, Michelle Oakins bullied
by staff and patients, died from an aneurysm. Throughout these tragedies Graham
continued to have his own way at the clubhouse as he prepared for his next trip
abroad. He manipulated Silvia Clive and
Amy Tebbutt who were in their sixties at the clubhouse, and is obsessed with
his mother who he blames for putting him away when he broke windows in his
parent’s house. He does get threatening when he is in danger of being
discovered. He hides behind staff, and makes a pretence of helping but he is
all hot air, his real achievements thin on the ground, and his manipulative
self- serving achievements many. He had relationships with other patients at
the clubhouse and manipulative jealousy may have played a part in his neglect
of duty the night Denise died. I told him I intended to visit her and though I
was not interested in her as a girlfriend, I think he may have thought
differently. The idea of Graham White being near vulnerable patients doesn’t
bear thinking about. He is a truly selfish individual who needs professional
help from a qualified psychiatrist and psychologist, and I’m afraid that this
help may only be found as an inpatient, perhaps on a secure unit. In my opinion
he poses a threat to society. To make matters worse, his sister and brothers
work for the social services and may be covering for him, as when the finger of
suspicion turned on him at the clubhouse, where for a while he was the subject
of gossip, his sister turned up on a placement.
You
can’t help thinking that those who play the mental health system, either as
impostor patients, or as staff merely working to feather their own nests, are
contributing to the high mortality rate of the legitimately mentally ill.
After I left Stonehouse
hospital my father visited me for a while, but my parents move away. Though we
have exchanged notes on birthday and Christmas card we did not speak to each
other for 17 years, and thought that it would be too stressful to confront
these issues. My sister visited me once a year but she was abusive, moaning
about money, undermining my work with comments and accusation. It is pointless
communicating people who, on hearing you are ill turn up with a handful of
gimme and abusive remarks, as if I owe them anything.
Liz
Brown was very slight of build and could not have been 5 foot tall. Her face
resembled that of Fuchsia Groan, the heroine of Mervyn Peake’s Gormanghast. As
a teenager Liz had been treated at the Priory Ticehurst House in Sussex, in the
adolescent unit. As an adult, Liz was a patient at Orchard House Psychiatric
Unit at Joyce Green Hospital, Dartford, and at Little Brook Hospital. Though I
was introduced to Liz by the staff at advance housing who noticed that we had a
common interest in art I did not become her friend though I noticed that she
had her own compartment in the fridge, and that she would sometimes sketch in
the garden. Liz accepted a move to the more independent MIND housing project
where she one of the flats in the house where I was staying.
MIND was once mainly run by and for the
middle aged and elderly long term mentally ill men and women who at the time
made up the majority of national health psychiatric patients. These patients,
usually suffering from depression following divorce or bereavement, often
exasperated by keeping up the working class or middle class pretence, were
legitimate patients who required only basic supervision and posed a minimal or
no threat to safety of health workers. The 1990’s care in the community programme
put the emphasis on short term financial savings. Everyone knows that the old
hospitals have closed down but few understand the disruption caused by the
closure of the day facilities, the day hospitals. Occupational therapy
departments at the day hospitals rehabilitated and restored confidence to many
patients who attended who were then able to return to work or find new
employment.
As
a result local Social Services were forced to dump patients who needed a higher
level of support than a mental health charity could provide on MIND’S doorstep.
So instead of having to cope with large majority of sad depressed but
unchallenging patients, MIND are now expected to cope with patients with more
serious psychiatric conditions, conditions that often require in-patient or day
patient treatment that stopped with the closure of the old asylums.. To make
matters worse, to coincide with the care in the community programme Kent County
Council saw fit to close the group homes, shared houses that had accommodated
the long term mentally ill living in the community. As if this situation was
not bad enough, the Swanley social service mental health team were advertising
for more social workers and besides being understaffed, were and still are
overworked.
The
previous occupant of Liz‘s flat, Mathew, had been transferred to Broadmoor
following his conviction for stabbing a local GP in 2000. This incident was
reported in the national press, on the front page of some newspapers. At his
trial a year later Mathew was reported to have said that ‘they had been winding
him up’. I wondered if the staff knew something as one of them had told me that
Mathew was upset about a month before the incident. Around that time another of
the Mind housing officers, Alison Gordon went drinking at a pub in Gaol Lane,
then driven her Citroen Deux Chevaux to the local woods and hung herself. A
third housing officer, Georgia Harley she could not believe the attitude of
some of the staff at Mind Dartford before she left. Shortly after Mathew been
sent to Broadmoor, John Manzoni, then head of MIND Dartford left to start
another job. Dartford MIND employed Sally Pearson, who had only worked with the
mentally ill for a year. Prior to that and for ten years previous she had
worked with criminals. Previously she had run a probation hostel. The character
attributes of a probation hostel manager are different from those needed by the
manager of a local branch of MIND. Those responsible for employing the new
manager may have thought that the Mathew incident would happen again which goes
to show how out of touch they were. The Fundamentalist Christian staff, Jill
Pinder and Dave Baker left the housing staff. Sally replaced them with Natalie
Smith and Deirdre Di Palma who were given a job with no specific agenda because
the government kept changing the mental health service never presenting a clear
plan. The government seemed more concerned with reassuring the public and
transferring responsibility to the charities. As a result the staff were
obliged to invent their own work plan. They informed us that they would be
holding monthly health and safety checks. With an electronic thermometer their
symbol of authority they would test the tap water for Legionnaire’s disease. We
were told that this was a requirement of the housing association. When I
telephoned the housing association they had no knowledge of such a requirement.
These inspections were erratically timed and often at a few days’ notice. Liz
hated these intrusions. Anyone who is involved in creative work knows that
privacy is often essential to the process. Artists usually want to show only
finished work if at all. The visits were disruptive, but the staff argued that
no-one turned up to their house meetings, and that left on their own patients
would not only deteriorate but they would neglect the property as happened with
a previous tenant who after refusing to admit visitors for a year was found to
have covered the entire floor surface of his flat with rubbish and litter,
enough to fill twenty bin liners. In the change from the more supportive
atmosphere of the communal care home, Liz was allowed more freedom, and though
she was able to continue with her creative interests she was also free to not
eat and become more anorexic. It was clear from the start that MIND were not
able to cope with the situation, soon Liz was obviously underweight but when,
soon after she had moved in, she attended a Summer Fayre run by the local MIND
office. No-one seemed to notice let alone care, and for the first time I had to
notify the social services myself, a pattern that was to repeat itself many
times. Subsequently when I did ask MIND for help they actually refused to
notify the social services merely adding ’what can we do?’ leaving Liz’s fate
in my hands.
Living
in the same house as Liz for the last years of her life I decided to keep my
distance early on, only talking to her when I ran into her by chance when I was
leaving or returning to the building. If I noticed that she was sick or that
the lights had not been on in her flat for a couple of days I notified the
social services and often she received help as a result. I told her I was doing
this and she had no problem with this. I soon found that if I was persistent
the social services would visit her and put her back in touch with the
appropriate health workers, specifically the Red House eating disorders unit at
Maidstone who would take her in as an in-patient or day patient. Friends and
Family untrained charity workers, even trained professional mental health
workers are no more able to cope with the anorexic patient than perform heart
surgery. Liz was devious, her illness made her so and she had learnt how to
fool anyone close to her long ago. This meant that even if she allowed regular
visitors they would be met by a highly rehearsed and practised act involving
clothing skilfully worn and adjusted to conceal weight loss and a manner and
conversation so polite and a disposition so sweet that she could delude almost
anyone, but coming from a background of psychiatric care where her act would
have been immediately seen as transparent, and not seeing her on a daily basis
I was usually lucky enough to notice when Liz was drastically underweight.
The
Supporting People initiative was part of the nationwide response to the
disasters that the Care in the Community initiative had brought. In part the
idea was to make care agencies accountable for their action and was a safeguard
against unscrupulous landlords who ran hostels for the mentally ill for profit,
exploiting the patients. But the council now wanted evidence of staff patient
participation, requiring Mind to create projects to support their claim for
finance.
In
the spring of 2005 MIND housing staff had been full of enthusiasm for a new
resident Andrew Upstill aka Andrew MacPherson.
As soon as he arrived I heard him say ’Liz and David they look so ill, Idont
care if they die.’ He ingratiated himself with MIND by building a garden
structure with the fancy decking seen on improve your garden television
programmes. Though at least half the residents including Liz were against these
improvements MIND insisted that the modification of the garden go ahead and
then said that they would be putting in new flower beds around the structure. I
warned the staff that the garden would become unmanageable with no other
residents apart from me interested in gardening, and only a weekly visit from a
part time gardener, but Deirdre insisted. A landscape gardener was invited to
visit and give an estimate. I had net curtains that allowed me to see out but
stopped those outside looking in. Deirdre told the gardener that one of the
residents was a ‘poof’. Deirdre decided to give the job to Andrew. I was told
by a MIND staff member that Andrew’s father had money. His father would give
him a large sum of money if he got a job. I don’t know if the work in the
garden counted towards this deal. He needed a home for his children while he
waited for a court decision regarding their custody. If he could not put them
up for the three days a week that he was allowed the court might not be so
favourable toward him in their judgment. Having donated his time and effort
into ’improving’ the garden, he then set about moving his children, two girls
of junior school age, into his flat on a part time basis. He charmed Deirdre
and Natalie into allowing his children to use one of his rooms as a bedroom and
installed bunk beds. Natalie and Deirdre visited Andrew regularly, giving this
clearly quite capable patient support that might have been better directed
elsewhere.
You can imagine the noise and disruption this
fellow caused, with his children and garden project, in a house meant for the
mentally ill. Andrew was desperate for partial custody rights for his children,
and allegedly for his father’s money. The desperation caused stress the stress
in turn manifested in his behaviour. Andrew became for a while the life and
soul of the party, encouraging female residents to drink, offering Liz alcohol
all the time knowing that these residents were on medication and that alcohol is
contra-indicated. The garden project was not just an example of favouritism
toward Andrew by Deirdre and Natalie. The garden structure would, while the
flower beds were weeded and full of new
plants, provide a fine example of a
staff led project when the staff renewed their application for the Supporting
People grant they needed to claim a hundred pounds a week for looking after the
residents.
Andrew
did not need much support. To be fair it must have been harrowing for him to
have to look after his children, feed them put them to bed then get them ready
for school the next morning from a house full of long term psychiatric
patients. Though he was desperate he was a patient and good father but he was
not able to show the same qualities to all the residents. The garden project
was a straight transaction between staff and Andrew. In return for working in
the garden he and his children were given lodgings. The staff encouraged and
supported Andrew while Liz was left to deteriorate. Liz declined Andrews’s offers
of alcohol and friendship. She had her own friends.
Liz’s
self-harm scars on her arms had faded to white, indicating that she had been
through that phase. I was shocked when Tom the caretaker told me that Liz had
self-harmed recently, but not surprised. Something or someone was triggering
Liz‘s negative behaviour. Tom asked Andrew not to leave sharp tools lying
around the common room. However Andrew continued to do so, and turned up to a
house meeting sharpening a chisel. Seeing that Andrew had been allowed to move
his children into the house, Liz’s upstairs neighbour Linda Sheppard moved her
boyfriend John in. Both these actions against the rules set out in the tenancy
agreement. Andrew held a garden dinner party to which only certain residents
were invited. With loud music, wine and beer they sat in the structure until
past midnight leaving bottles and glasses to be cleared up the next day and a
bunch of house keys be returned from a garden table to the fellow’s door the
following morning. With reluctance MIND eventually moved Andrew on though they
have astonishingly elected him to their board of governors. He left behind him
boxes of craft materials in the basement, open boxes containing modelling
knives, scalpels, surgical blades and razor blades for all to see, as a leaving
gift. I was left with the unpleasant task of disposing of these items as they
were obviously a potential trigger to a self-harmer like Liz. One cut in
funding had a particular devastating effect on Liz and at the end of the summer
term 2005 she was told that her art course was to close down. I believe that
this would also cause Liz to reduce her intake of food.
The
situation in the MIND flat Liz above didn’t improve either. The Linda’s
boyfriend regularly shouted abuse at another female resident who dared to
answer him back, and he used to watch the television into the early hours
volume turned up contemptuous of the other residents adding to the mounting
stress Liz was enduring. Not one to complain Liz took it out on herself
establishing a diet regime which caused her illness to escalate until her
immune system was compromised. MIND
staff were aware of tensions in the house but did little except organize the
gardening project. The only other action they took was to continue with their
monthly health and safety checks. In her sleep deprived state and subject to
these disruptions it is no wonder her anorexia became life threatening. With
unsuitable residents adding to her distress, Liz was too tired to face the day
and continue with her artwork. Thus demoralized she responded the only way she
knew how, by reducing her food intake which in the environment of an
institution would have been enough to attract the attention of qualified staff.
Not so in the community, where Liz was isolated, living on her own. She was
visited by MIND staff but managed to hide the fact that she was dangerously
underweight.
I
was furious at MIND and Andrew for the disruption they caused with their garden
project. I put my anger into my artwork, I had a chance to show work at the
yearly exhibition at Hall Place with the user led art group Centrepieces, based
in Crayford.
There
was enough negativity in the MIND house to trigger Liz’s anorexia. Liz told me that she felt isolated in the
community. And what a community it is for the mentally ill to exist in. With
society progressively more violent, more intolerant and more crowded the
psychiatric patient is also expected to tolerate prejudice, usually under the
influence of unwanted and unnecessary ‘medication’.
Liz’s
options were constantly being reduced. Leaving the house to visit the shops or
the park was an ordeal for Liz. Though local residents have free healthcare and
the benefit system to fall back on, they have been no different to the rest of
the country in adopting the fashionable uptight and selfish attitude of the
21st century. Sadly the attitude of the community toward the care in the
community patient has been deplorable. There has been absolutely no attempt
whatsoever by successive governments of any party to educate the community as
to what to expect from the care in the community programme. On the 18th of
August 2005 social workers, accompanied by a psychiatrist rang my doorbell at
11 am. They said that they were seriously concerned about Liz and could they
have access to the inside door to her flat. After checking their identity card,
though I recognised them as mental health workers, I let them in but they were
unable to enter the flat as they did not have a key. I advised them to contact
MIND office as I knew MIND had a pass key, and left them to discuss the matter
in privacy. About an hour later MIND housing officers knocked at the door
saying they had some bad news and I asked them if Liz was dead and they said
she was and then I asked them if she had taken her own life and they said they
couldn't say too much so I asked them if it was an overdose and they said pills
were present but they did not know if it was overdose, accidental or
deliberate. The Police were investigating and had said there was no evidence of
foul play
A
few days later I was asked to help assess the situation in Liz's flat, by a
MIND housing officer who said that she was too upset to enter the flat on her
own; I discovered Liz's diaries, approximately ten journals, note books. I felt
these journals, with the extensive collection of photographs were an important
record of her life, even more relevant than her artwork. To me I felt that it
meant that her life had not been such a waste after all. I managed to read a
couple of entries in the diaries before I noticed the atmosphere in the room
becoming uncomfortable. One of these read ’Am I pretty? ... cry myself to sleep for hours at night’, another
merely described a day out. At the very least a professional health worker
would be able to study this record and perhaps understand the nature of her
illness an illness that is becoming more prevalent amongst young people.
Any
differences were put to one side as Liz’s property was cleared from her flat.
In hospital a psychiatric patient has few possessions. When discharged into the
community often a patient will try to compensate by hoarding. Liz had spent the
money she saved on food on art materials (which found their way to the user led
art group), books, and distressingly, a wardrobe, draws and cupboards full of
clothes from the catalogues which she used to hide her illness. All these along
with her artwork and related resources had to be taken away and in the end the
couple who had were clearing her flat asked in despair if they could leave a
few of her remaining possessions in the flat as they found the task too
distressing. I was worried for her artwork as so often such work is
disrespected. I was informed by MIND that Anne Marie took Liz’s artwork. Liz
had feared that father would throw her work away. I feel Liz had more to offer
with her artwork but perhaps she made her point by choosing not to use her
talent to convey her illness, but to be apart from it.
I
asked to move into her flat as the noise from the upstairs flat was annoying,
and so that Becky could have a downstairs flat that she needed being unsteady
on her feet. The staff agreed. Moving into Liz’s old flat I found the
possessions that her executors had left behind. There were some plants on the
windowsill, some very cheap jewellery in a little wooden box, a silver ring a
silver cross, some cassettes, some glass decorations, and in a draw in the
kitchen and on her bedside cabinet, some boiled sweets. I had rescued some odds
and ends from the dustbin, I have always tidied up the bins after the residents
who have not always been well enough to put their rubbish out properly. I found
her anorexia videos, programmes about the illness that she had recorded from
the television. I found a door key but would not enter the flat. I should have
rescued her diaries but did not. However I did find a couple of photograph
booth pictures of Liz and a notebook that had hardly been used. I made a note
of the following table I saw in this notebook.
Sunday 10th July 10266 steps 3.16km 116 kcal steps:kcal 88 Mon 11th approx. 4500 steps ( only
entry for this day ).
Tues
12th 12846 steps 3.98km
129 kcal steps:kcal 99
Wed 13th 11483 steps: 3.56km 108 kcal steps: kcal 106
Thurs 14th 7680 steps: 2.38km 83 kcal
steps: kcal 93
Fri 15th 4348 steps: 1.35km 51 kcal
steps; kcal 86
The Footstep per
Kilometre ratio is consistent where the Footstep per Kcal ratio, that I have
added, is not. Though the record is only for five days, the date shows it to be
one month before her death. It is possible that the calorie amount represents
daily intake and that she continued a regime of minimal food intake and
exercise to work off the little amounts he did eat until the end. It is
possible and probable that there were days when she ate nothing at all. All
around her flat were little tins, other containers, and packets of boiled
sweets, each sweet having a calorific value of 19. Although none of the entries
in the table are multiples of 19 perhaps the other calories were tea. Black tea
is well known amongst anorexics to be 1 calorie. So perhaps after pigging out
on a whole six boiled sweets she decided to cut back on the tea and just have
two cups that day, making sure she burnt off the evil calories by walking a
distance of 3.16 km a distance she arrived at by counting her 10266 footsteps
that day. Whatever the calorie intake,
the entry says little for those paid to care for her if she was able to carry
out such a regime and the attendant passing back and forth of blame and
responsibility says even less.
Staff
at the Red House regretted that compulsory admission was not the current
policy, even though they were aware that Liz’s immune system was damaged by
years of anorexia. Liz Brown had a body mass index of 17.5. Compared to the
slightly lower Body Mass Indices flaunted by super models, some claiming as low
as sixteen, and those under eighteen banned from fashion shows in Milan, Liz’s
condition might not appear so extreme but this 17.5 is more than likely the
weight she left the Red House with. She would regularly drop below this reading
but would stay away from staff when she was not eating. As she was less than
five foot the 17.5 puts her well weight or target weight at under six stone to
begin with. Staff at the Red House probably did not know that Liz had, before
and up until the time of her death, had to share facilities with another
resident who, after falling down the stairs, was treated for MRSA infection at
St Mary’s Hospital Sidcup and had only just returned to the MIND house. MIND
staff, any of whom could have carried the disease back to the house after
visiting, gave no instruction regarding this matter and to this day there are
no washing or toilet facilities for specifically for staff, visitors, or
maintenance workers on the premises. For Liz this was a cause for concern for
she had an immune system damaged by years of anorexia and taking medication on
a very empty stomach. It is also likely that the staff at the Red House were
unaware of a mark the size of a half crown on Liz’s forehead that looked like
either a bruise or an infection.
Liz
Brown’s Post Mortem was inconclusive. A blood test was taken but appears to
have not contained enough toxins to provide a definite verdict of suicide.
Liz’s body was found, apparently appearing restful, on the floor. If this is
true, and there is no reason to believe that it is not, then it indicates that
Liz died as a result of her illness. Always in hindsight there are events that
could have been taken as warning signs or cries for help but were at the time ignored
or misread. Why did I not see and report her again deteriorating health. In the
weeks before she died Liz actively avoided me. I noticed her creeping by my
window; through the net curtains I saw her walk by she walked by with an apple,
perhaps she was trying to convince me she was eating.
Sadly again, Liz was able to hoard property that she did not want to be
parted from and this increasing and unforeseen problem that has become part of
care in the community may have been a factor in her illness. Liz was about to
be readmitted to hospital under section but had been informed of this decision
by a health worker, who probably thought that he or she was giving Liz a little
time to pack a few things for her stay.
There is no doubt in my mind that Liz was an
accomplished artist. I have seen work by her dating back to 1989 and over the
years Liz attended her classes and gained qualifications. Liz learnt skills in
art that ranged from realistic life drawing, and this in itself is significant
as it contradicts the popular conception of the artist who suffers from mental
illness as being clumsy and childlike in their art. Liz was not. In fact it was
not uncommon to see an artist who was exceptional talented at realistic
depiction in the old hospital art rooms as opposed to the bizarre and
neo-surreal artwork that the public are expected to accept as representative of
the art of the mentally ill.
Liz
also showed a proficiency in a wide range of crafts that used to take place in
the Occupational Therapy department, before it was phased out with the care in
the community programme. The Occupational Therapy department was part of the
Psychiatric Day Hospital and their closure has been particularly damaging to
the patients living in the community. Here the day patient could pursue a wide
range of crafts from the often ridiculed basket weaving to knitting and making
stuffed toys to weaving cookery woodwork metal work printing and of course the
art room was part of the occupational therapy department. Liz excelled at cake
decoration and at tapestry. She was a keen photographer and sketched from her
photography. She kept an extensive image bank of magazine and newspaper
cuttings. Today Liz’s work would be described as that of an Outsider artist,
but sadly this term has yet to be accepted in this country like it has in
America, France, Ireland or Russia. Though she would set up a stall at craft
fairs she never made the money that her work deserved.
Though
there is provision for force feeding under section 63 of the Mental health Act, in practice this, along
with the constant one to one nursing often required, seems to out of the realm
of the Little brook staff. Though Liz’s doctor at the Red House eating
disorders unit at Maidstone regrets the situation, the unit does not take
compulsory patients as the expense and potential for disruption forbids it. It
seems that the days of the nurse patiently sitting at her station outside the
side room for weeks or months until the anorexic patient reaches a target
weight is a thing of the past. In the old days when the old psychiatric
hospitals took the burden of the chronically ill, the incurable, and the
elderly from the psychiatric units the anorexic patient would rewarded by a
walk to the day room, where they could start to socialise again. If the
treatment continued to be successful this would be followed by shopping trips,
occupational therapy and eventually a trip home followed by increasing
leave.
Liz was to have been readmitted to Little Brook Hospital. This
psychiatric unit is situated next to the old Stone House Hospital gradually
replacing the old asylum, but with a vastly diminished allocation of in-patient
beds and day-patient facilities. At that time Little Brooke had recently found
fame as the hospital that was treating Andreas Grassl, better known as the
'Piano Man', who was found on the beach at the Isle of Sheppey, Kent, by
police, on 7th April 2005. Andreas would not talk when questioned, and carried
no identification. He was taken to Little Brook and, still mute, he was kept on
the locked ward for a month before being transferred to an open ward. Though he
steadfastly refused to talk, he did however draw a picture of a piano, an image
he drew repeatedly. He was taken to a piano in the hospital chapel where,
according to staff, he played ’meandering melancholy airs’, for two hours. This
was no mere reverie. Soon his performances, now timed at up to 4 hours, were
identified as a selection of excerpts from Swan Lake, the Lennon and McCartney
songbook, and the work of the Italian composer Ludivico Einoudi. He was given
the use of an upright piano which was kept on the ward. When not playing he was
seen to draw more pianos and write music, keeping a folder of sheet music that
he carried with him. The newspapers ran his story. Mental Health workers
betrayed the rule of patient confidence by talking to the press about the
'Piano Man' who refused to speak.
At first the papers were sympathetic, speculating as to his
identity and inviting the public to submit information and theories. The August
edition of the Fortean Times, a magazine devoted to the paranormal contained a
two page article about Grassl. ’Who is the Piano Man?‘ the article’s headline
asked. Ironically two days after social services workers found Liz's dead body
at the MIND house in Swanley, the 'Piano Man' broke his silence and was almost
immediately discharged freeing his bed for another patient. The irony is more
profound because the previous year a patient suffering from the same illness as
Liz, Anorexia Nervosa was refused admittance to Little Brook despite the fact
that doctors had given her only five days to live. Almost as soon as he spoke opinion turned
against him. A ’member of staff’ claimed
that far from being the virtuoso musician that both his social worker and ward manager had claimed he could barely play
a note, and often tapped one key continuously. The Piano Man broke his
silence on the 19th August, by the 23rd
he was not only without talent but had ’confessed to being gay’ though it is
fair to say that any patient who does not run with the pack in the Dartford
area is called gay by the staff. Though the same paper that outed Andreas
Grassl printed an article the following day in which his father denied the
allegation, adding that he if anyone would have noticed such a thing, another
daily had reassessed and downgraded his talent. No longer a probable concert
pianist or ballet company ‘repetiteur‘, the Piano Man’s lawyer, Jurgen Linhart,
told the press that ‘Andreas ‘had learned to play a keyboard by himself.’
Though he denied that the Piano Man had any special talent, Mr Linhart added
’But it is simply wrong to suggest that he just tapped one key all the time.
Josef Grassl, the Piano man’s father confirmed that Andreas Grassl was a
talented musician who, besides playing a simple keyboard alongside his younger
sister, also entertained relatives on an accordion. Perhaps it is simply wrong
to call the Piano Man gay and perhaps it is wrong and a little insulting to
call someone who has been mute for four and a half months a fraud but that is
what Dr Stoat MP for Dartford and government spokesman for health did in the
national and local press. By September the first, according to the Dartford
Times, Dr Stoat was saying that the Piano Man should ’be placed under a
European arrest warrant and brought back here to face charges. He’s guilty of wasting
police and NHS time.’ Dr Stoat was apparently reacting to a report in a
national paper that claimed that Andreas Grassl was a fame hungry young man who
wanted to appear on German television. The paper claimed that Mr Grassl was a
fame hungry young man who wanted to appear on German television. His silence
had been a publicity stunt. He had written to celebrities asking for advice on
how to become famous. The Piano Man was an impostor patient who stood to make
the estimated cost of his treatment by selling his story to the papers, more if
he wrote a book about his experiences.
The article went on to say that the Piano man was now back with his
family in Prosdorf, Bavaria. The family home was surrounded by reporters who
were tracking his every move. Two years later, the Piano Man has yet to sell
his story or publish a book. It is likely that the press no longer surround the
Grassl residence.
Surprisingly Dr Stoat did
not accuse the Piano Man of blocking the very bed that Liz Brown needed to stay
alive though the fact that he started to speak just two days after she was
found dead on the floor in her flatlet suggests that someone may have informed
him of this fact in an attempt to make him talk. He certainly understood
English well enough. The fact that he ‘knew what was going on all the time’,
would have been enough to enrage the spiteful gossips that try to control the
staff that work for the Dartford and Gravesham mental health service. Certainly one member of staff saw fit to
discredit Andrass Grassl in the daily papers of Tuesday 23rd August 2005.
Whether this was an individual or collective act I do not know. Certainly Dr
Stoat appeared to pick up on the suspicion cast on Andreas Grassl , whether he
was egged on by the press or was directly in touch with Littlebrooke staff does
not matter much. It is hard to dislike Dr Stoat. When he has been asked to
speak on the news he presents a reassuring character.
Though
Andrew had left by early summer, the upstairs neighbours were still playing up.
Then new resident who proved too ill for supported housing began taking up MIND
resources. She fell down the stairs contracted MRSA while in hospital and was
moved to another house where mind staff doted on her despite the fact she had
an able bodied and supportive family which Liz did not. She moved back shortly
before Liz died, playing the same record over and over again until a ground
floor flat became available, which it did when Liz died. Just because no-one
noticed her illness entering another acute stage for what must have been at
least some weeks may imply neglect but who could say that if that neglect was
wilful? After Liz died the staff expressed a wish to destroy her diaries. I
thought this was insensitive and suspicious. Perhaps Liz documented the abuse
she had to endure. I was told that her friend Ann-Marie had taken her diaries,
along with her artwork, by a social worker. The fact that the drain to the bath
in Liz’s old flat has been blocked with what looks suspiciously like ashes may
be just a coincidence. But Natalie and Deirdre’s comments on entering her Liz’s
flat just added to my misgiving. Natalie looked at the wall storage unit, full
of Liz’s art and craft materials books diaries photographs image bank and art
and craft work, and said ‘Call that work?’. The Deirdre made some comment about
Liz having ‘had her fun’. Deirdre described patient’s benefit as ‘owt for
nowt‘. Then there have been the everyday undermining comments, the drop in the
voice when mentioning an achievement. If they were able to make such callous
remarks, they were probably capable of starting rumours.
I
have had to suffer verbal abuse since I moved to Swanley ten years ago. Soon
after I moved in one of the residents, Linda, shouted in the hall, ‘I don’t
want that poof living here’. At ASDA’s the women at the cigarette counter would
point me out as a ‘poof’ to each other and to customers. Soon the men who
collect the trolleys were in on the act as were some of the women at the tills.
For years I have had to suffer the taunts from not only from some of the ASDA
staff but from the customers they told. Once I saw a red faced trolley
collector tell the woman at the till in Holland and Barrett’s that I was a
‘poof’.
And
so the rumour spread. Soon I could not go shopping without someone pointing the
finger. I am not gay but the more you deny it the more they will insist that
you are, and if you ignore them they insist just the same. I went shopping in
Orpington, Bromley, and occasionally in the West End when I made the journey to
buy art materials and books for research. I had to take the bus to Orpington
because the female ticket seller and the station master were verbally abusive.
I
decided the only way out of the situation was to work and make enough money to
move away, so I applied myself to the only things I know how to do, writing and
artwork. Under the illusion that honest work would be rewarded I collected
research material for a book, part memoir part biography, and enrolled with an
art group and a gallery. But the art’s world was more competitive than I
imagined. By the time I had work that
was saleable the bullying, which by this time had spread to the supported
housing itself, in the form of the same verbal abuse occasionally accompanied
by threats. The next door neighbours the street sweeper the dustmen were all
verbally abusive. I could not step outside the door for fear of verbal abuse
from neighbours or residents visitors.
When Becky was moving into flat 6 I heard her sister and some other
people one of whom I now to be her sister talking outside the kitchen window of
flat 2 where I was then living; ‘Shall we ask him to help us’ said one, ‘No
he’s a poof, the woman said’ said Becky’s sister. Some of Becky’s visitors were
rowdy. One of them said as they left the house outside the same window,’ The
best thing he can do is move out of here’; a remark that I felt was aimed at
me. One visitor was shouting up at Becky’s window one morning at six o clock in
the morning;’ I can visit here any time I want’.
I
believe it was the same fellow who later called me a poof in the car park by
the doctor’s surgeries in Swanley. We exchanged words but I walked away. I ran
into him outside the doctor’s surgery, he was with two women; one who I think
may be his partner outside the cedars surgery. I took refuge in the surgery and
when he followed me in I threatened him with the police. ‘If you call the
police I’ll kill you he said. I asked the receptionist to call the police and
the fellow walked away. I don’t think that was the start of the verbal abuse at
the Cedars surgery, I think the typist at the back of the receptionists work
place was already mouthing the word poof at me. After this incident I was met
by more hostility by not only the typist but also by an office worker who is
quite short and has quite long dark hair.
Here
are some of the homophobic taunts I have had to endure over the years.
‘What’s
he doing here?’
‘He
won’t get another appointment’.
On
one occasion a receptionist asked me point blank' Why do you sleep with men’ On
another a patient asked’ What’s wrong with him?’ ‘He’s a poof’ replied the
short receptionist. On another occasion the same receptionist said that I
looked like I had AIDS.
You
can imagine how terrifying it is to be singled out as gay in a surgery that
serves a parish that recently voted a British Movement candidate onto the
council, in a town with a strong equally homophobic catholic and gypsy
presence. Not all are homophobic but some are. I informed Dr Williams about
bullying she said to contact social services. I told Dr Williams recently that
the receptionists had had ‘a pop’ at me a few times I wonder if this was the
reason for the phone not working incident.
It
may be that the staff manager will not take any complaint from me seriously as
I have a history of mental illness but will be more willing to listen to a
health worker. The staff involved are unlikely to admit verbal abuse and it is
likely that they will cover in any case as if there is a question of harm as a
result, the practise will not want to be held responsible. I had heard two of the MIND staff tell
visitors I was a ‘poof’. First Jill told a visitor. Then just before it was
decided that Andrew was to install decking in the garden, Deirdre had said the
same thing to a landscape gardener who was giving an estimate for the work. If
one of the MIND housing staff told Becky’s sister I was gay perhaps their
malicious gossip and incompetence was inspired by the fact that they the MIND
staff have admitted to claiming for a service that they are not providing
leaving patients at risk. This may account for the verbal bullying I have also
had to endure.
A
fellow with an ulcer on his leg and another fellow who carried a clear
polythene carrier bag full of scraps of paper were harassing people in the high
street. They were seen drinking on the bench by the railway bridge, and outside
the citizen’s advice. One day they turned up on my doorstep demanding ‘help’
with the same menacing attitude they used to accost passers-by in the high
street. At first I wanted to help them and I agreed that they could wait in the
house while I phoned the office to see if they would send someone to see these
two street drinkers. When they started to make their way to the house I
realised that I had fallen for their intimidation and I told them if they did
not leave I would call the police, they left angrily. When I saw the fellow
with the leg ulcer again he shouted at me calling me names in a threatening
way.
After
Tom retired a new gardener/handyman turned up. After filling our wheely bins
with Dartford MIND office waste he turned up making homophobic remarks to a
female resident. He then went on to call me a poof in front of an elderly
stranger when clearing the snow. On another occasion he turned up at the
weekend and told his 12 year old daughter that I was ‘gay’. More recently he
said to another resident that he can’t wait until that poof dies’. I suspect that his mind has been poisoned by
the same staff who wanted to destroy Liz’s diaries, and want to divert
attention away from that fact.
I
caught the bus to the Bluewater shopping centre the other side of Dartford from
Swanley. A fellow who used to work for MIND and left to become a member of the
local council was talking to a companion. He pointed me out saying that I was
quite a worker in my day, but now they say I have got AIDS. Then he said
something that I thought might point to the source of the rumour. ‘You were
nothing if you did not work in those days’. It seemed that he was saying that
in case I had heard him gossip. But it was also a phrase I had told to one of
the MIND housing officers when I was describing what it was like in parts of
America with a strong work ethic. Perhaps it was nothing but the rumour was
being circulated by the local gossips. This talk worried me enough to have an
HIV test more than once because, even though I had not practiced risk taking
behaviour, I worried that someone had somehow contaminated me.
Liz’s
anorexia was not just a media fuelled obsession, centred on achieving the
‘perfect look’, in relation to her weight. Her illness was also triggered by
and a reaction to bullying by people who thought they have a right to interfere
in her life by using her as an emotional punch bag when they could not get their
own way. Andrew would leave sharp objects about, Linda’s boyfriend would turn
up the television knowing that he was tormenting Liz.
Deirdre
wants to assert herself and prove she is in charge, because that way she can
hide her incompetence. There are mitigating circumstances. Or at least reasons
for this trio’s cowardly behaviour. Andrew was afraid of losing custody of his
children. Linda’s boyfriend may have been ill, reports vary. Deirdre along with
the rest of MIND staff are given an impossible job, by a health authority that
has a limited mental health budget, as do the social services, housing
association and local authorities. These agencies all delegate work to MIND
that they are not trained to do. But there is no excuse for bullying.
Recently
a resident was terrorised by an ex-boyfriend who entered her flat by breaking
in by breaking a large double glazed downstairs window. It was left to another
female resident to call the police and handle the situation. To claim even a
small amount of funding MIND have had to agree to take younger residents on
short term leases. MIND cannot provide rehabilitation for these residents and
in any case the residents sent here now are more likely to have issues with
drink or drugs, whereas in the past this problem was kept out of the housing
project by previous staff who were able to stand up to both the social services
who knowingly send patients with drink or drug problems. They also send
patients with dysfunctional families without warning MIND of this potential cause
of disruption in the housing project.
But there is no excuse for spreading malicious rumours. Perhaps ‘the lady’
who Becky’s sister referred to was trying to distract attention from the events
that occurred during the summer of 2005.
If
MIND staff has to sink to this level then it is indicative of their
incompetence. If MIND staff continue to be expected to look after the patients
that need a higher level of support than they can provide there will be more
disruption at the expense of the well behaved residents. If MIND resort to
bullying then they should not be surprised when residents become resentful. The
fact that MIND staff wanted to destroy Liz’s diaries is suspicious but also
suggests she may have documented the bullying she had to endure from not only
residents but possibly the staff and local bigots. Because of her slight build
and frailty Liz usually went out accompanied by one of her friends or a social
worker. I still wonder how much of my account of Liz’s final days found its way
into her diaries and if Ann Marie, Liz’s friend was really given these diaries
to look after.
I
was forced to take medication I did not need on and off for twenty years. My
parents put me in hospital when I was twenty one and then out on the street for
no reason as far as I am concerned.
My
father attacked me once when I was a child, and then again when he came back
drunk from the pub when I was a teenager, and again when I was in Farnborough
psychiatric unit. He set about me and I had to fight him off. He was not
serially violent or usually intimidating, he just lost it a few times and each
time he had been drinking. I still have a copy of the letter the eminent
psychiatrist Dr Dale Beckett wrote to the asking my parents not to visit. Dr
Dale Beckett founded the first drug clinic in London and advised the Wooten
report. He was the doctor who treated drug users without blaming them. So I lost my work more than once because of
my family and my father was verbally hostile when I and out of earshot the rest
are the same when I am with them. They are not so bad on the phone then they
turn up and are abusive. They are nice when they want something. I’ll tell you
why my parents are so mean and it’s because of their upbringing and the war. My
grandfather was a tailor during the depression when nobody could afford a suit.
After the war my grandfather bought up surplus uniform material, died it grey
and the soldiers told him they were glad to be out of khaki. When I was born my
mother and father were homeless and had to stay with my grandfather who had my
father redecorate the house, and then he kicked us out of the house. I was two
at the time. On my mother’s side her parents would send her and her sisters to
the cinema while they rowed and drank gin. My father, like me, won a
scholarship, earned a scholarship really, to a good school but had to leave at
14 to earn a living. The war came along and he was posted first to Scotland,
the served two years in India, and if what he went through during the
depression had a bad effect on him, what he saw in India was worse, never mind the psychological
effect of waiting for the Japanese, who thankfully never got as far as India.
But the Japanese and Germans were still talked about and feared by the children
in the playground where I grew up. While my father was doing his bit helping to
defend the empire. My mother watched the doodle bugs from the Welsh Harp just
outside London that started when she was about ten. She lost her brother in the
war, I’m not sure exactly what happened, he was shot down and captured at the
battle of Crete he was taken prisoner, the Germans killed him. All this
affected them psychologically in a world where to complain was to be weak and
something had to give and slowly everything became my fault. But there is no
excuse for having someone put away and no excuse for the ill treatment I
received. There is no excuse for putting someone’s work in the gutter and
driving them out of their home. There is no excuse for lying to psychiatrists
and condemning someone to unnecessary psychiatric treatment, and then when they
are damaged by the treatment turning up with a handful of gimme then being
disruptive when they can’t get their own way.
Talking
of ambulance chasers, the woman appointed my carer, Natalie has been talking
about me behind my back. At my exhibition at Bethlem my sister tried to show me
up. On another occasion my sister and her husband offered to give me a lift to
the Saturday Studio at Bethlem. On the car journey to West Wickham I felt like
getting out of the car as I had to put up with uncalled for hostility. But I
knew that they would carry on being antagonistic, when they visited over the
years they could not leave without making a snide remark or two. On one
occasion when they visited I had tripped on a lead on the carpet and the can of
wood glue I was holding flew out of my hand as I fell. When it landed the lid
fell off and it went everywhere. My sister’s husband asked if I threw the tin
of glue in anger after I had explained what had happened. He said it was
important that he knew. Why? So he could go running to my parents and ‘warn’
them, thus consolidating his position as a surrogate son, and heir. He is
always making snide remarks about me being on benefit when he knows I am
entitled to it. His brother committed suicide. Their attitude continued
throughout my father’s illness. I went to visit but he was still talking to me
as if I was the same person he last saw nearly twenty years ago when he ended
up threatening me as I walked away. What can you do when people think they have
a right to tell you what to do and they are wrong. You can only walk away when
arguing is pointless, when you know that if the situation escalates you will be
at a disadvantage. Why disrupt my therapy and work? Was it jealousy, because my
sister wanted to be an artist and chose a more reliable career? Was she
manipulative because she knew that after father died someone would have to look
after my mother, and she did not want the responsibility? Was it because she
remembered how none of my mother’s sisters would look after my grandmother
leaving the responsibility to my mother? The antagonism goes back generations
and I could always understand why they were antagonistic. The depression, the
war, the fact that my father turned my parents out of his house, almost
conspired to ruin his dreams, then when I started to take an interest in art he
was not supportive, not when he locked me out of the house and put my artwork
in the street. I still would not mention it but time and again I lost my work
because antagonism and a general lack of respect from not only my family but
psychiatrists who think that the mentally ill are only fit for menial or
factory work. Then on my mother’s side there is a history of rowing where she
was with her sisters sent to the cinema while her parents drank and rowed. And
my parents rowed for a while and this came back when my father was ill and my
sister wants me to look after my mother but I can’t, because I am ill. So I
have to leave them to it. By confronting these problems by writing I am
avoiding the inevitable conflict that will occur if I talk to them. My sister
has been quite manipulative as has my ex-partner who has also been abusive and
deceitful. So I never heard from any of them at Christmas except with a card
and a present sent through the post. They are behaving appallingly selfishly,
but they are comparative strangers to grief and are trying to take it out on me
with verbal abuse, arguing blaming, and may not even know what they are doing
because they have never been to group therapy where you learn to identify these
problems by talking about them in an environment where it is understood that
the conversation goes no further.
On
other occasions I had to own up to things I never did just to get a bed in the
madhouse. In a way I resent having to write instead of painting and drawing,
but I am using a therapeutic approach that Liz Brown showed me and am pleased
to carry on her work. I am aware of the value of my biographical work regarding
Terry Burns. I am also aware that any artist is liable to scrutiny regarding
their private life as the world of art meets that of the public figure. It did
not use to be that way. Artists did not seek publicity and were judged on their
work. Not subjected to character assassination. I have written about my
experiences in my book ’The Road to the Asylum’. I had no intention of drawing
any conclusions when I confronted the issues I wrote about but after reading
back what I wrote I was able to gain insight into what I had written.
MIND
staff may have spread rumours in Swanley, and there’s not much you can do about
rumours. I saw Graham White outside the house once, perhaps he was spreading
rumours as well, I saw Amy Tebbutt a while later down the road, I passed her when
I was on the bus, she said I’ve got to go there’s someone I don’t want to see.
I saw her in ASDA a couple of times but I don’t know if they really kept my
share of a lottery win I only have someone else’s word about that, though now I
can remember Robert, a Stone House patient laughing about a Bob Marley song
that refers to a sweepstake winner, and finding it disproportionately amusing
around that time, all circumstantial.
It’s
nearly ten years since Liz died and I can’t help thinking that if I did not
have to cope with the harassment the rumours brought, I could have saved Liz at
least for a while, like I saved Terry Burns for a while when I talked him out
of committing suicide.
I
told the head of MIND staff that I do not want to work with them too many
undermining comments. I went to Cornwall for a few days rest from the situation,
and after nearly a week away forgot about these problems, passing the time by
posting comments on the Guardian web site using the comment is free facility,
discussing some controversial art.
On
the train back I realised the problems would still be there and some anxiety
crept back. At Paddington I was pulling the rucksack I had tied to the suit
case on wheels while carrying a shoulder bag, when I saw Ray, who I wrote about
in my book ‘The Road to the Asylum’, and though I managed to walk past him
without having to stop and talk, I blanked him I suppose, the bad memories came
flooding back.
There
was the fellow who ruined the Burnt Ash Hill squat by brining amphetamine when
the one thing I asked him to do was not use the stuff there. His speed freak
antics brought him into contact with a drug related murderer who visited
commune and later, around the corner in a flat, murdered his girlfriend. What
was supposed to be an arts commune was reduced to a very seedy drug den.
Amphetamine use had always been frowned upon by the hippies in the Burnt Ash
Hill squats and previously users were asked to leave. But Ray’s friend Steve
followed him and I was outnumbered. Then when I went back to my parents Ray
went back to his, and then followed me to Croydon Art School where he was again
disruptive and anti-social. Ray moved into my room and I was homeless unable to
stay at college.
Terry
Burns once saw the Devil appear before him in what has been described as a
schizophrenic vision. I would have rather seen the Devil walking up the
platform at Paddington station, than Ray.
I
had actually looked him up on the net, when researching my book. He had done
well for himself, and was working in a therapeutic community with mal adjusted
teenagers. Then he moved on and some bureaucratic job in the NHS. He had
recently retired and is on the board of another mental health charity. A few years ago I noticed his picture in an Art
Centre brochure. He was playing on acoustic guitar night, ’no electric guitars
please’, it read.
I have phoned ASDA
and complained more than once but though they have been sympathetic, the
situation did not change. So I phoned the head office, and spoke to a woman
called Chantelle who again was sympathetic. She asked me to name the abusive
staff and asked if they did not wear name badges, and I replied they did not.
Chantelle told me she would get in touch with Swanley ASDA and ask the
supervisor to have a word with the staff and to make sure that in future they
wore their badges. Within a couple of days the staff were wearing name badges,
and some walked away from me so I could not read their names. Some also wrote
their names in small letters so it was more difficult to read them. They only
wrote their first names, which is understandable. However I did go up to some
of the staff that had been abusive over the years. I now no the big bully woman
who usually works on the automatic tills near the tobacco counter is called
Chris. A little supervisor who once was actually in crocodile tears at the
prospect of having to deal with ‘that poof’ as a customer, is called Sue.
Another woman with butterscotch coloured hair who also works on the automatic
tills is called Natalie. Another thing the staff do is give the limp wrist sign
behind my back and Natalie has done this more than once besides calling me a
poof. The main offenders among the male staff are a tall skinhead who works
collecting the trolleys and hand baskets. He is called Dave and has said ‘look
there’s that poof’ a few times as had the tall fellow who is always working in
the bread aisle in the mornings, he also called me a ‘nutter‘. A woman who
works on customer services with longish dark hair has been abusive. I have had
the same trouble with the night workers who stack the shelves near the tills
and from a security guard. I have taken their names as advised by ASDA head
office but have yet to send them my report.
A tall slim woman with long
dark hair was re-stocking an isle near the automatic tills and said ‘there’s
that poof’ to a shorter blonde hair woman who wears gold jewelry. The blonde
woman started to shout and a paternal looking older man emerged from aisles
further down the shop. I paid for my shopping and walked out. Then a few days
another older man said the same insult to a shorter stocky man who collects the
trolleys in the car park. The shorter fellow made a dart throwing gesture as if
to say ‘bullseye’.
Seeing Ray brought back bad
memories. Ray introduced me to a fellow many years ago when I was still a
teenager.
John was the local LSD
connection. LSD were few and far between and when under the influence of the
drug, vulnerable. They needed a safe environment to take the drug which John
provided in his small bedroom at the front of his father’s anonymous council
house in St Mary’s Cray.
An upmarket ‘Bush’ Dansette
type record player with the additional speaker and a collection of LP’s chosen
for their psychedelic covers and content provided the soundtrack to the trips
his customers took. John must have had quite a good supplier because at point
he had an uncut block of ‘microdot’ LSD. He would cut off enough for a trip
with a one sided razor blade. ‘Oh that’s too much, I’d better cut a bit off
that’, or that’s not enough, I’d better give you a bit more’. Most of the time he
was good natured and patient with his customers who he considered friends. A
handwritten legend on the wall read
‘In kind hands I am a diamond, in cruel hands I am dirt’.
Even though John was Ray’s LSD
connection, they did not get on that well. Ray may have resented the control
that John had over him as his supplier. At his home Ray liked to be ‘Captain
Trips’ and John was the same at his house, so when they tripped together Ray
said ‘never again’. According to Ray, John was a nice guy but he talked rubbish.
It is true that John would end the frequent silences during a trip with hippie
inanities like ‘we need to care more’ or ‘how can people hate’ but he was not
the kind of person to mess with people’s heads to give them a bad trip. He was
a considerate host who generously supplied joints and tea for his customers. He
treated them like guests, and would often say don’t worry about it when anyone
offered the fifty pence or one pound going rate for a trip. E sold some
cannabis, he once had some hash oil, other times black cannabis, which he
obtained from his acid dealer. So I suppose, small scale as their transactions
were, they were rival dealers.
When John visited Ray and his
girlfriend would refuse to answer the door, hiding from view if they were near a
window.
John wrote down his LSD
inspired thoughts and wrote to German ‘Krautrock’ band Yatha Sidra and they
replied. They visited him at his father’s house and his acid poetry was set to
music by the obscure German musicians. He turned up one day in a blue suit and
with a haircut and proudly played me a cassette made by the Fichter brothers.
It sounded a bit like a ‘Children of God’ recording but I only got the
opportunity to hear it the once. The Fichter brothers went on to form
‘Dreamworld’ a name I had told John I had intended to call my own band should I
find anyone to join, as the band Ray and I had tried to form was going nowhere.
I think John had suggested the name as his own idea and I had no problem with
that. By that time John had moved into the houses converted into bedsits at St
Paul’s Cray. Ray did not like John moving in, but there was nothing he could do
about it. By then John’s girlfriend had left him and run off with his supplier
and John had stated using amphetamine sulphate. His new girlfriend Moira became
psychotic after being given LSD and was in the local psychiatric unit. John
would go on to join her there. Love turned to hate when amphetamine abuse
increased, accompanied by the advent of Punk rock. I wandered away from the
house, and eventually took the last train of the night from King’s Cross to
Northampton.
I got off at the stop before
my destination and walked along the road. I arrived at the town before at dawn
before the paper shops were open. Paper shops are the first to open then
bakers. After wandering around the town I bought something to eat from the
bakers. I went to the shopping centre and outside the public lavatories I was
searched by plainclothes policemen. ‘Look at his arms’ one of them said,
looking for needle marks. There were none, so they let me go, and went to a
café to buy a cup of tea. A nurse saw me and gave me a pound. Somehow I forget
who told me I found out that I could get a bed at a hostel opposite the
Racetrack, a park. I had to go to the social security office and arrange for
them to pay for rent and the two meals a day that the hostel provided. By the
time I reached the hostel it was gone five in the evening and the social
security was closed so the night warden let me sit in the office while he slept
in his chair. I fell asleep on the floor and woke early, and left for the town
centre, to sign on. I mentioned that I had been in psychiatric hospital and
wanted to stay at the hostel and that, and the fact that I was quite disturbed,
due to lack of sleep and anxiety helped hurry my case and I was told to come
back at the end of the day when the counter payments were paid out. This I did
and reported back to the hostel where I was given a bed in a downstairs front
room which had been converted to a bedroom with five beds and a wardrobe.
Ray showed me the sights of
Northampton the tourists never see. He took me to St Crispin’s psychiatric
hospital to collect his medication which he said he had to take to the practice
nurse at his local surgery. St Crispins was to the west of the town centre, St
Andrew’s asylum to the north east. St Andrew’s was where John Clare was a
patient and later in the 1950’s Jane Bowles was treated after she had a stroke.
Instead of going straight back to the hostel Roy took me to the local Convent
where the nun’s provided a midday meal for homeless men.
There was an artist in the
hostel. He told me that his wife had not only thrown him out but thrown
painting he had spent two years working on into the street. A car had run it
over ruining it beyond repair. He was abusing a solvent called Zof. He said he
only used it occasionally. There was a young couple, Kathy and Pat, the rooms
were segregated, and Pat was quiet and thin while Kathy was as cheerful as
anyone could be in an overcrowded homeless hostel. Most of the other residents
were quite older homeless men who kept their heads down. There were two meals a
day, breakfast and an evening meal, like most hostels residents were expected
to be off the premises by nine o clock in the morning and not return until four
in the afternoon. At weekends there was an extra meal on Sunday, a dinner. Hot
meals were preheated in tin containers like those from a Chinese takeaway and
were eaten in silence. The hostel took most of the resident’s social security
money leaving the residents with a few pounds pocket money.
I
scrimped and saved my train fare back to London. I wandered around Soho all
night and I don’t remember where, but I was stopped by the police who said I
had an outstanding court case that I was not aware of which was a very minor
criminal damage charge. I had broken a small window by my parents’ back door
when I went back to see if I had anything left when they put all my
possessions, what there was of them, on the front door step. My parents must
have called the police and pressed charges. In those days if you could put
someone’s property outside the house and lock them out you could evict them.
They have changed that law since. I was taken to the police station, then to
Brixton as I was of no fixed abode, despite the triviality of the crime. I was
held there on remand for a week then Dr Ghali from Farnborough said he was
transferring me to Oakwood asylum, near Maidstone in Kent.
I
have written about Oakwood before, but did not mention that Ray’s friend Steve
later told me that he went to school with Carlos.
From
Oakwood I was transferred to Farnborough and from Farnborough to Rydal Mount,
in Beckenham, a hostel that was much more pleasant than the hostel in
Northampton, but still overcrowded and with similar rules and financial
arrangements. All the residents suffered from long term mental illness, and
were a lot less intimidating than the residents in Northampton.
Later,
in the 1980’s I would be in and out of Farnborough, and met a couple of the
Bromley speed freaks that I did not know in the seventies, Clifford, a pianist,
and Paul Wells, a fellow with a cockney accent and a sheepskin coat who took me
to the Odd Spot café in Bromley North, a haunt of the old speeders. Speedy John
used to frequent the premises. Not all speed freaks were aggressive, but they tended
to have unrealistic expectations and make unrealistic plans which became more
impractical as the amphetamine wore off.
There
was Punk poet who was on the admission ward for a while who had a collection of
punk rock cassettes many of whom were political and unknown outside their own
circle.
Elizabeth
Brown 1975- 2005
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